Name

Graeme Smith

Bio

A HOLE IN THE HEAD

Graeme N Smith, 43, has been a journalist for more than 20 years, and is currently Content Editor at s1, part of the Herald & Times Group, making him responsible for the 107  s1community websites. In December 2011, he was diagnosed as suffering from a glioblastoma, a form of brain tumour which is not curable, although it can be controlled by chemotherapy and radiotherapy. As part of his determined fight against the condition, he's started a blog, Pure GNS, and we'll be bringing you regular extracts from Graeme's voyage of self-discovery. To quote him: "No-one seems to be funny about cancer any more. I'm just putting the 'umour back into tumour."

He's also decided to raise as much money as possible for the Beatson Oncology Centre in Glasgow, and he'd be delighted if you wanted to help. Click here

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  • True, I took a couple of days off work, but that was more through tiredness than anything else. And since I'm told I'm a little anaemic, that's not surprising. I just slept to get through that. Other than that, it hasn't gone badly at all.

    As I write this, on the evening of day five of five, I am very tired. But that's about it. I've eaten normally throughout, and none of the threatened nausea has manifested itself this time. No Saharan thirst, no volcanic Simon Cowells. I feel I've had a bit of a result.

  • Yesterday I picked up my bumper bag of poisons from the pharmacy at the Beatson, this morning I started taking them again. Could be fine, could be another five days of unpleasantness. We'll see.

    I should have begun this round of chemo last week, but it was deferred. My consultant said he was considering that anyway, to give me a chance to fully recover from May's horrors, when the nastiness didn't stop after five days but dragged on for a further three weeks courtesy of a wee food poisoning bug called campylobacter.

  • Didn't put my heart and soul into getting it, didn't spend my entire life thinking only of it, didn't need it, didn't in fact under any circumstances want it. But I've been living it nonetheless.

  • Proper medicine, I mean. You know the thing: carefully worked-out treatments, tested on scientific principles, applied by highly-trained health professionals. Stuff that works.

    OK, some of it is a bit harsh and has left me tired and occasionally feeling quite sick. But since it is also stopping me from dropping dead from brain cancer, I have to wholeheartedly regard it as A Good Thing.

    But there is also the other kind of medicine, which ain't.

  • Last week I was waxing lyrical about my gentle chemo regime, how as long as I stuck to the procedure carefully it would wing past without side-effects and let me go about my day. And it did, on day one.

    It was just days two to six (of a five-day course, I should add) that I spent flopping about the place, feeling alternately shattered and pukey: I've had such a lovely week.

  • As usual, there was a fair bit of hanging about as the bloods were tested before word could come back that yes, I could have my next batch of harsh chemicals; but given that they take enough to fuel a small black pudding factory, I suppose that's only to be expected.

    All fine, thanks for asking - still red and packed with platelets and white cells and other circulatory stuff in all the right quantities.

  • 'Course, they're not always supportive, but that's fine: if anything, I'm a little surprised I've attracted so little opprobrium so far – I have been pretty glib about a subject about which people are somewhat sensitive, although I suppose that as I do have cancer myself, I also get use of the subject-specific Get Out Of Jail Free Card.

  • It's the old radiation fatigue. It's not going away, and it's becoming a nuisance.

    It seems to have been hanging around me like a lead cloud for weeks, like I'm swimming in jelly while wearing an Aran sweater. And the haircut isn't making me any more streamlined.

    It will go away, of course. Probably. But I don't know when, and the unpredictability is the worst bit. I can't plan my day.

  • The week on Gran Canaria was excellent, thanks for asking; exactly what I needed. I've returned well fed and watered, thoroughly relaxed, and with less sunburn than I left with, which may be some kind of record.

  • So as I write this, Clare and I are sunning ourselves in the gentle low-to-mid 20s of Gran Canaria. It's very nice, thanks.

    I usually regard hotels as places to sleep, not really to be revisited between breakfast and midnight, but since I'm weirdly gubbed at odd times of the day and have to break off from whatever I'm doing to go and sleep, Clare insisted on going for a cut above my norm, a hotel with a pool with sunloungers and a room with a balcony.

    Which was nice of her, I thought, as I paid for it. Still, it is very pleasant.

  • It is, of course, the Orfit mask which until Thursday was used to strap my head tightly to the zapping table at the Beatson, lest the death-rays miss and burn out 1982 instead of cauterising some tumour cavity.

    Since it's tailored exactly to my head and of no use to anyone else, the nice people at the radiation station let me take it home after my final session.

  • Not the most practical of modes of transport, but let's go with it for now.

    When he got back, he broke his back…

    I'm surprised he made it at all, what with the confectionery-based aircraft and everything.

    And that was the end of Crackerjack.

  • The thing is, I'm getting quite close to the end of my treatment. Next Thursday is my last head-zapping, after which my hair may well start to grow back. So I'm a little reluctant to take the plunge.

    Here's the scenario: From the front - things don't look so bad, possibly because I have a freakishly large head which is hard to take in all at once from close up. My left side and top appear fine, my right side a bit oddly thin, like normal male-pattern baldness which has for some reason slipped a bit.

  • The answer is 'with very little'. But that seems to be working, which surprises no-one more than me.

    Boredom, or the fear of it, is what had initially bothered me the most about having all this time on my hands. I find it all too easy to slip into that Sunday afternoon torpor Douglas Adams described as "the long, dark tea-time of the soul", where ennui and inertia combine into urrggh.

  • I spent most of December with a baldy bit behind my right ear thanks to the spot of light brain surgery I underwent on the first day of advent. It grew back quite quickly, but the rest of it insisted on racing ahead, leaving me looking weirdly unbalanced. More so than usual, I mean.

  • I'm now into the second full week of my treatment, and I'm starting to feel it, with days where I feel completely washed out and quite sick. I knew to expect this – nausea is the main side-effect of Temozolomide, my particular flavour of chemo, and although it is controlled with anti-emetics I was moved to milder ones after day five, so I anticipated a certain queasiness –  but I hadn't anticipated such an impact. The nausea has been mild, but it ruins my concentration and leaves me oddly devoid of ideas. And that is buggering up my day, to be frank.

  • Two wee boys meet up on Boxing Day.

    "So, what did you get, then?"

    "I got Monopoly, and a book token, and an orange."

    "Oh, right. I got a bike, and an Xbox, and an iPad, and a TV, and a blue-ray player, and…"

    "Gosh. Wish I had cancer."

    It seems that all you need to do to become the centre of attention at Christmas is to contract a life-threatening medical condition. If I'd realised, I'd have done this years ago.

  • I realise that at the moment my profession sits somewhere between kitten-blinding and child vivisection in the popularity stakes, and that people currently doubt the integrity and even the skill in what at least some journalists do. But there are skills involved, and I have been very pleased to have them over the last few days.

  • I've got a hole in my head, I'm wearing a fetching pair of Moll Flanders toeless stockings, and I have a drain up my knob. But I feel pretty good, all things considered.

    Obviously, I've had quite a lot of morphine today, which might have something to do with that. And which might also, incidentally, mean I'm writing utter nonsense, or at least more so than usual. But I've just been told I can charge ahead and just use my phone, which means wi-fi for the Android tablet, which means an update here. Hot off the hospital bed.

  • Ok, that's alienated any readers who didn't grow up watching UK children's TV in the 70s and 80s, not to mention those with taste and discretion.

    But it looks like I've got a bit of record breaking to do myself, as it turns out.

    The lumpy bit they took out of my head last week is called a glioblastoma. Better out than in, rather like Simon Cowell and a life-raft (thanks to Jo Brand on QI for that one), but not a good thing to have had in my skull in the first place.

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Graeme Smith

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