Patients with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) are being "neglected", charity Action for ME said.
The charity's report found just three in 10 patients believe their family doctors are well-informed about their illness. Of 2000 sufferers surveyed, half said they had not been to a specialist clinic in five years.
Action for ME chief executive Sonya Chowdhury said: "We know there are many brilliant and supportive professionals working with people with ME/CFS.
"But there is still a long way to go in providing targeted health and social care services to meet the complex needs of people with ME/CFS."