Chloe Glasson, 14, of Kirkcaldy, Fife, was struck down by the incurable condition four months after receiving the jab against the virus that was sweeping Scotland in late 2009.
She said it had damaged her school career and left people wrongly believing she was drunk or had been taking drugs.
The schoolgirl is among dozens of youngsters across the UK to suffer narcolepsy after receiving their first swine flu jabs.
She is hoping to be eligible for £120,000 compensation from the UK Government which has admitted the injections can trigger the condition in some cases.
A further announcement is expected on Friday that tests are to begin on sufferers to see if they qualify for compensation.
Chloe said: "What hurts the most is when people see me in public and I'm starting to fall asleep and they look at me as if I'm drunk or have been taking drugs.
"I am no different to anyone else in that I have still got feelings and I can see the way they are looking at me.
"I have still got hopes and dreams. I want to be a drama teacher when I'm older but I've really just got to take everyday as it comes."
Chloe says she also suffers mood swings and disturbing dreams as a result of her condition.
The youngster said the condition leaves her with extreme emotions.
She added: "I can go from being really happy and chatty to really annoyed to really upset in a few seconds and all it takes is one little thing to set it off."