HEALTH secretary Jeane Freeman has agreed to meet with parents of children with cancer over their concerns about Glasgow’s flagship hospital campus.

Parents of several children who have been treated for leukaemia called on the Cabinet Secretary to meet with them to discuss the ongoing problems at the £842m Queen Elizabeth University Hospital (QEUH) and adjacent Royal Hospital for Children (RHC).

Reports leaked to the Herald on Sunday yesterday highlighted a number of issues with the site, including concerns about a ventilation system which could put people with low immune systems at risk, missing or inaccurate record keeping, and wards which were not built for purpose. 

Parents requested a face-to-face summit with Ms Freeman to discuss the care their children have received. Annemarie Kirkpatrick and Alfie Rawson are among the those who called for the meeting.

The Herald:

Alfie Rawson and three-year-old Paige. 

Ms Kirkpatrick's daughter Stevie-Jo was struck down with a rare bacteria while being treated at the QEUH for cancer, leaving her with lesions all over her body.

READ MORE: Families "disgusted" after leaked documents reveal extent of problems at Glasgow's super hospital campus

Mr Rawson's daughter, three-year-old Paige, contracted a similar infection while also undergoing treatment for cancer.

Ms Kirkpatrick said: “Parents want to meet Jeane Freeman to find out exactly what is going on. As we've said before, we feel like we've been misled about the risks at these hospitals.

"We have been fobbed off by NHS Greater Glasgow and Clyde, and quite frankly Ms Freeman has dismissed my own concerns in the past when I wrote to her.

"She assured me the hospital was safe after a boy died from bird-poo fungus, and weeks after she told me it was safe my daughter caught this horrible infection."

The Herald:

Ms Kilpatrick, insert, wants answers from Health Secretary Jeane Freeman

She added that the incident had shaken her faith in the healthcare system, saying: "It's hard to know who to trust now, but we need answers and we don't feel we are getting them from the health board.

“Other parents are afraid to speak out, but privately they are just as worried as I am. They think their children's care would be compromised, and they worry that they will be treated negatively if they speak out.

"My daughter has had cancer for six years, and I can't stay silent any more about what is going on.”

The report revealed that ceilings would need to be torn down and fixtures taken out of the children’s cancer ward and the ventilation system replaced entirely.

READ MORE: 'There's no trust left' as hospital infection row grows​

Assessors estimated it would cost £2.8m and take at least a year to fix the one ward.

Mr Rawson criticised the lack of oversight from the Scottish Government, saying: “Jeane Freeman so far has not shown any control over this situation. She has told Parliament, and the public, that issues with the hospital are 'under review'.

"The review might take another two years, during which time there will be hundreds of children going through that hospital which we can now see is blatantly unsafe.

"She has to meet all of us parents, and give us the answers we are looking for. It's not even about children, it's about every single patient in that hospital who is at risk if they have a low immune system.”

The Herald:

Stevie-Jo Kirkpatrick

Their calls come following a week of difficult questions for the government on the problems with the Edinburgh Sick Kids' hospital, and the QEUH.

The Health Secretary and the First Minister were grilled at Holyrood by MSPs, angered by the announcement that the Edinburgh development would be delayed for a further year and cost upwards of £16m to fix.

Issues identified in Edinburgh included problems with ventilation and record-keeping from the build, which have now emerged to be similar to the issues found in Glasgow.

A Scottish Government spokesman said: “The Cabinet Secretary’s primary concern is the safety and well-being of all patients and their families – and understands the severe distress which has been caused to Mrs Kirkpatrick and her daughter.

READ MORE: Teenage cancer patient forced to stop chemo early as rare hospital infection leaves skin lesions over all her body​

“The Cabinet Secretary has instructed her officials to make arrangements for her to meet with Mrs Kilpatrick and other families affected by the current situation as early as possible so she can hear directly of their concerns.

“Ms Freeman commissioned an independent Review to look at the QEUH building’s design, commissioning, handover and ongoing maintenance to establish how these matters contribute to effective infection prevention."

He added: “In addition, the Cabinet Secretary also asked the Healthcare Environment Inspectorate (HEI) to carry out an unannounced inspection of the Queen Elizabeth University Hospital (QEUH) site. 

 “Following the publication of HEI’s report, NHS Greater Glasgow has rightly produced a detailed plan to action the requirements identified. Healthcare Improvement Scotland and the Scottish Government will be closely monitoring the completion of all required actions.”