IT is a "scandal" that one in three cystic fibrosis sufferers who are waiting for donated lungs die while on the transplant list, a charity has warned.
Only around 20% of lungs donated are actually used in transplantation in the UK, the Cystic Fibrosis Trust said.
The charity has called for an overhaul of the system to end the "transplant lottery".
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Sufferers on the transplant list wait, on average, for more than a year - 412 days, the charity said.
More than 10,000 people from across the UK suffer from the life-shortening condition, which is caused by a faulty gene. It leads to a sticky mucus clogging the lungs and digestive system, which makes it hard for sufferers to breathe and eat.
The report's authors called on NHS Blood and Transplant to develop a new "lung allocation system".
When lungs become available they are currently offered to the closest transplant centre, when a recipient has been identified.