THE disease arrived on cue. Whooping cough comes in four-year cycles.
There were over 4000 cases in Scotland in 1982. The next outbreak began
in late 1985. In the autumn of 1989, it returned again.
Hand in hand with the disease came the debate. To immunise or not? Can
the whooping cough vaccine cause brain damage? The Scottish Association
for Parents of Vaccine Damaged Children has its point of view. The
medical profession, by and large, has its. Arguments have proceeded from
the public domain to the courts.
In this household there was no issue. The two boys were vaccinated. We
had never witnessed the disease and, I suspect like most people, were
thus only dimly aware of the potential havoc it can wreak upon a young
body. Still, it did seem to us silly not to have them immunised when
none of the arguments against the vaccine appeared iron-clad.
Catherine was the exception. She was born disabled. Her condition --
spina bifida -- had left her paralysed from the waist down.
Additionally, when she was a couple of weeks old, it was confirmed that
she had hydrocephalus.
This meant a further operation to implant in her brain what is in
effect a sophisticated drainage system to allow trapped cerebro-spinal
fluid to escape.
All of that's another story. However, it resulted in the family GP
saying no way when it came time for whooping cough vaccination. There
was no choice. And in December of 1989, during the Christmas holidays,
Catherine, who is now nine, was hit by the disease.
Not that we knew it at the time. She had suddenly turned weepy, which
we attributed to the variety of infections that plague her life. And
there was a hard, dry cough that we associated with the climate.
It persisted for weeks. Cough bottles were ineffectual. Abruptly, on
January 12, there was a change in her condition and, more on instinct
than evidence, we kept her off school.
The following morning, Catherine was dramatically ill. She started
vomiting. Whatever it was that she was throwing up, it was not the
contents of her stomach. The emissions were a dreadful-looking mixture
of bubbling froth and mucus -- a thick, yellowy-green substance.
And, that morning, we heard the first ''whoop''. It's not an entirely
descriptive word. The sound is an arching, high-decibel gasp -- try to
imagine a scream by inhalation rather than exhalation -- suffused with
the agony of young lungs attempting desperately to haul in air. The face
goes purple, the eyes bulge, the head pours with sweat and looks as
though it's going to burst.
Bluntly, the sight and sound scared the hell out of us. Apart from
which, we were extremely worried about the effects of the strain and
pressure on the delicate valve mechanism inside Catherine's head.
Catherine herself was patently terrified.
She was immediately put on a course of antibiotics by the doctor.
Within 24 hours she was racked by the disease.
Attacks came as frequently as every 15 minutes. Such was their
intensity that blood vessels in Catherine's nose ruptured. As well as
gulping desperately for air, retching and whooping, Catherine had to
contend with blood streaming from her nostrils in the middle of it all.
On top of the individual symptoms, each spasm provoked a panic attack
during which Catherine held on to one of us like a vice. She could not
be left alone.
Then she had crippling stomach pains and started vomiting blood --
which, the doctor speculated, might have been caused by an allergic
reaction to the antibiotic, from which Catherine was promptly removed.
Over the next 18 nights, Catherine had one night's unbroken sleep. She
had no appetite and wouldn't look at food. It took the utmost persuasion
to make her sip fluids. And all the while, dozens of times per day,
there were the paroxysms, never easing in their severity.
Before the end of the third week, Catherine was completely
debilitated. Despite her disability, she is physically strong and
resilient. At present, she cannot raise her body by her arms -- a kind
of press-up, and her only means of independent mobility. At the end of
it all, she will have to regain that strength. It is easy now to
appreciate the damaging and fatal effects the disease can have on very
young children.
Whooping cough has devastated Catherine to a level way beyond that of
any of the major operations she has had to undergo, or the cumulatively
weakening urinary infections to which she is prone.
She has developed a severe chest infection. Pneumonia was suspected.
X-rays were taken. Another antibiotic was prescribed. A week later,
after Catherine had a major relapse, the doctor was back and the
antibiotic was changed yet again. The ominous note was now sounded for
the first time that if there is no perceptible improvement, Catherine
might have to be committed to Ruchill Hospital.
The disease marches on relentlessly. We have given up trying to
identify patterns and stages. Catherine, meanwhile, has laid siege to
her body. She is now exercising massive physical control, attempting to
suppress the cough -- which causes such a build-up that when it does
erupt it is with a volcanic ferocity.
The other night, after a vomiting attack and a juddering series of
paroxysms that left her trembling floppily in my arms, she lay on her
bed and wept with a childhood equivalent of depression. She now knows,
as we do, that no-one can tell her how long it will take for the disease
to run its course. She also knows that even on a good day, when the
spasms do break out, they are as severe and distressing as ever.
I haven't mentioned the disruptive effects of this on domestic life.
They seem irrelevant. And I don't intend to formulate any ethical
polemic from Catherine's experience. The decision -- whether or not to
vaccinate -- will remain the dilemma and free choice of every family.
But I do think that the ravaging nature of the disease is perhaps not
fully appreciated unless it has been experienced or witnessed at close
quarters.
I'm not saying that we tend to dismiss it or take it for granted --
like measles or 'flu -- but the words of Dr James Gray, a consultant in
communicable diseases at the City Hospital in Edinburgh, do ring in this
parent's ears with an urgent significance.
''Whooping cough is a preventable disease,'' said Dr Gray in the
Herald last October. ''One problem is that as more children are
vaccinated fewer parents encounter a case of it, and so don't know what
it's like.''
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